Tuesday, May 13, 2014

Cerebral Palsy



Once we knew that Lexi wasn't dying we took her to see a pediatrician. The irony of that is not lost on me. That was the first time we heard the words Cerebral Palsy. We were told that was the name for Lexi's stiff muscle tone and lack of movement with her extremities. It basically meant brain damage that affected her motor system.

We had many questions about what this would mean for her future. Her pediatrician was wise and told us that we were going to have to wait and let Lexi show us what she could do. We got in contact with United Cerebral Palsy and I started researching. I read at least 10 books on Cerebral palsy in the next few months. I searched the internet for any stories of children with similar birth stories. I went to a support group for parents of kids with special needs. That was a time of soaking up as much information as possible with the desire to learn how to be the mommy Lexi needed.

We went to a new neurologist and had another EEG done. This time (surprise, surprise) there was brain activity! He did say it was abnormal though and that he saw evidence of mild seizure activity when Lexi's eye's were fluttering. She was put on a seizure medication.

Through all of this we were so thankful to have our baby back. The future seemed bright with possibilities because Lexi would be in it. We shared our testimony at church and dedicated our baby girl to the Lord.

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