As much as we tried not to let the new information from the doctor change the way we saw Lexi it definitely had an impact on many future decisions. Right away she was taken off of seizure medicine. She had an EEG again and although she did many abnormal movements none of them showed as seizures and with the added MRI results we were no longer afraid of more brain damage being done by seizures.
I also had to accept that it was not reasonable to assume that Lexi would grow out of her irritability or sleep through the night. At two and a half Lexi's sleeping was still much like the cycle of a newborn with 2 to 3 hour periods of rest followed by awake times. On the recommendation of another mom with a child with CP we decided to try a medication to help her sleep.
Lexi's future did not look bright with possibilities any longer. There was a good chance she would continue as she was for the rest of her life. This was something that made thinking about what was ahead very difficult. The verse I clung to during that time was 2 Corinthians 4:18 "So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal."
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